Sharing my Parkinson’s journey through writing

We write for all sorts of different reasons and in many different ways. I don’t do a lot of writing physically by hand nowadays – partly because one of my Parkinson’s symptoms is difficulty writing – and partly because I don’t need to handwrite now, with the existence of electronic devices such as the smartphone….

Summer learning (happened so fast)

I’ve recently returned home from a Greek Island where I spent the week with 60 complete strangers, and we had the opportunity to take courses including creative writing, making mosaics, singing, mindfulness and yoga. Here are some of the lessons I learned… Standing tall… In order to stand tall and grow, we need strong roots….

A change of pace

I’ve always been quite a fast person. I learnt to play the piano when I was a child. In my teens, my piano teacher used to say I was the only person he knew, who would speed up when it got to a difficult bit in the music. Likewise, I’ve always spoken quite fast and…

Determination vs acceptance … finding the right balance

There are two things which I have learned over the last year that seem to contradict each other. And I haven’t found a straightforward answer as yet. One, I need to look after myself and that includes accepting that I can’t do everything I might want to do. Two, I need to keep stepping out…

Being open to the unexpectedness of life

A few days ago I was sitting on a beach in Cornwall watching the waves. I could see the big waves approaching, yet every time, it took me by surprise just how big some of them were. Life can throw all sorts of unexpected things at us. Sometimes these things are big and completely life-changing…

Everyone has a choice

One of the things that helped me to truly accept my diagnosis of Parkinson’s Disease is when I realised that I always have a choice. I didn’t choose to have Parkinson’s, but I can choose how I live with it. That was the theme of one of my early blogs – Choices, choices and more choices….

Memories … a long walk with a big wooden cross

It’s Parkinson’s Awareness Week this week (10-16 April 2017). It’s also Holy Week. And it’s got me reminiscing about my life before I was diagnosed with Parkinson’s. Specifically, about a pilgrimage I used to walk every Holy Week, which was a big part of my life…a Christian pilgrimage called Student Cross. Student Cross is a walking…

It may have changed me, but Parkinson’s is only part of me

Life is full of changes – big and small. Some changes are exciting, some can be scary. Some changes are unwanted. My life as I knew it, changed completely the day I was diagnosed with Parkinson’s. It was as though my world had been turned upside down, and I was stepping out into a big…

The wall … and the rainbow

Walls can help us to feel safe and secure. For a long time after I was diagnosed with Parkinson’s, I built up a wall around me. I only wanted to share the fact that I had this degenerative, neurological condition with those closest to me. I needed time to digest and accept this life changing…

Hope and fear

None of us know what the future will bring. Sometimes the future seems exciting, sometimes it looks bleak. I have hopes and fears for the future like most people. I also have Parkinson’s – a progressive, neurological condition. I hope a cure will be found in my lifetime. I fear my condition will get worse…

Living with Parkinson’s – My reality

I’ve lived with knowing that I have Parkinson’s since October 2013. I’m now 40 years old. And I am lucky that up until I noticed my Parkinson’s symptoms, in late 2012, I had only experienced one major health issue in my life. I was in pretty good health for most of my life. It seems…

What Start Living Today PD means to me

Start Living Today PD is a Facebook support group for people living with Parkinson’s that I am privileged to help to run. It was founded by Heidi Reynolds in March 2016 and now has nearly 900 members worldwide. Our key words are positive, motivated and happy. As we approach our first birthday, it seems like…