All at sea and sharing a single sky

When music strikes a chord. And inspires blogs. All at Sea. Single Sky. Two songs which I’ve been singing with my choir recently – both by our Musical Director Gitika Partington’s band 3 Bucket Jones. Both of which struck a chord with me over the last few years – in fact they both inspired blogs….

And so it begins…

Excited. Nervous. Scared. Those feelings you get when you’re waiting for something which has the potential to either crush your hopes or fulfill them. That’s how I felt this week after the wheels were finally set in motion for me to start the assessment process to see if I am eligible for Deep Brain Stimulation…

Blog 100: The future’s not ours to see

As it’s coming up to seven years since the day I was diagnosed with young onset Parkinson’s disease, this blog is about where I’ve been on my Parkinson’s journey for the last year or so, and what may lie ahead. When you’re on five types of Parkinson’s medication, taking more than 10 tablets a day, and…

Singing for The Samaritans

“Some-times in our lives, we all have pain, we all have sorrow. But if we are wise, we know that there’s always tomorrow.” (Lean on me, Bill Withers) We’ve all certainly seen and experienced a lot of pain and sorrow in recent times. If ever there was a time we need to have hope for…

Discombobulated

I can hardly believe it’s August already! This year hasn’t turned out at all how I thought it would (and I’m pretty sure not alone in feeling this way). We’ve all experienced changes and challenges in our lives before. Yet somehow this year feels different. I’ve never heard the word ‘unprecedented’ used so many times…

Parkinson’s and perspective in pandemic times

I spent much of last year really struggling with my Parkinson’s. At the start of this year, I turned a corner in terms of how I was coping with everything, and I decided to focus on hope. I made plans – I booked a trip abroad with my best friend, I joined a new choir,…

Doing things differently and doing different things – part 2

We all have our strengths and weaknesses. I was never very good at sports, drama or public speaking at school. I was better at other things like maths, languages and science. I also didn’t enjoy the things I wasn’t good at and tended to avoid them when possible even after leaving school. Living with Parkinson’s means…

Doing things differently and doing different things

I am slightly bemused by the fact that somehow I have three virtual things in my diary on one day next week. Under normal circumstances, I wouldn’t feasibly be able to fit all of these in, with the travel time. I also probably wouldn’t have signed up for two out of the three, under normal…

Unwanted: Parkinson’s and the Coronavirus Pandemic

This time last year, as we approached World Parkinson’s Day on 11 April, I posted my shortest ever blog entitled ‘Parkinson’s is …‘. Today, with the Coronavirus Pandemic, we’re living in a completely different world and so I have added some thoughts about Coronavirus to last year’s blog… Parkinson’s is… Unwanted. Coronavirus is… Also unwanted….

A different world

Last month in my blog about hope I wrote: ‘My hope for 2020 is that I will be better able to cope with whatever challenges life throws at me – Parkinson’s or otherwise’. When I wrote those words, I never imagined that ‘otherwise’ would be a world challenge like Coronavirus. Never say never. It somehow seems impossible…