Kindness

“Everyone you meet is facing a battle you know nothing about. Be kind. Always.” Robin Williams I once had a hospital appointment that I was quite anxious about. When I arrived, there was a security guard outside the door who told me to ring the buzzer. I rang the buzzer and waited. Then another member…

Living with Parkinson’s… 9 nine years and counting

When I was diagnosed with Parkinson’s nearly nine years ago, I had no idea what my future would look like. I consider myself lucky to have access to brilliant NHS services for Parkinson’s and also great support from friends and family. Without both of these, my Parkinson’s journey would have been a much more difficult…

Rolling back the tears

After I was diagnosed with Parkinson’s, it was several months before I could say “I have Parkinson’s” without fighting back the tears. Three years after my diagnosis, I shared my first blog about living with Parkinson’s and I was overwhelmed (teary even) at the positive response and support that I received from friends, family, colleagues…

Parkinson’s and perspective in pandemic times

I spent much of last year really struggling with my Parkinson’s. At the start of this year, I turned a corner in terms of how I was coping with everything, and I decided to focus on hope. I made plans – I booked a trip abroad with my best friend, I joined a new choir,…

Doing things differently and doing different things – part 2

We all have our strengths and weaknesses. I was never very good at sports, drama or public speaking at school. I was better at other things like maths, languages and science. I also didn’t enjoy the things I wasn’t good at and tended to avoid them when possible even after leaving school. Living with Parkinson’s means…

Doing things differently and doing different things

I am slightly bemused by the fact that somehow I have three virtual things in my diary on one day next week. Under normal circumstances, I wouldn’t feasibly be able to fit all of these in, with the travel time. I also probably wouldn’t have signed up for two out of the three, under normal…

Focusing on hope

For much of last year I found myself really struggling with my Parkinson’s symptoms and side effects of medication. I know my symptoms are worse during stressful situations, but Parkinson’s seemed to spoil even the happy times for me. On several occasions, I had been looking forward to catching up with friends over a meal…

An A to Z look back at the last decade

Acappella choir – I’ve been singing in an acappella choir led by the brilliant Gitika Partington since 2005. So, well over a decade now. The fact that I have been singing for so long says it all. It’s one of my favourite things. Blogging – I posted my first blog in September 2016. I never…

Wishing for hope

As we approach the end of 2019, my wish for 2020 is that it’s better than 2019. For all sorts of reasons, it’s been a difficult year with many challenges for me and for many of my friends. It’s occurred to me that lately I’ve been wishing for lots of things to be different than…