With a little help from my friends

I’ve been finding living with Parkinson’s particularly challenging for several months now. The constant up and down of my medication cycle with dyskinesia thrown in, always feeling exhausted, disturbed sleep, anxiety, apathy, other symptoms and even just remembering which of my tablets to take when – sometimes just feels overwhelming on top of other life…

Moving forward

It’s almost six years since I was diagnosed with Parkinson’s. I’ve come a long way since then. Although my movements may be slower than before (and they may sometimes be jerky), for the most part I felt like I was moving forward. However, when I look back at this year, I feel that I’ve almost…

The ups and downs of a pilgrim’s path with Parkinson’s

I’d like to begin this blog by recommending a film called ‘The Way’ (2010) (starring Emilio Estevez, Martin Sheen and James Nesbitt) which tells the story of four unlikely pilgrims walking one of the most famous pilgrimages – to Santiago de Compostela in Spain. I watched this gentle uplifting film last week while on a…

Not yet

I haven’t written in my gratitude journal for a couple of days, and even when I do, my handwriting is often tiny and a completely illegible scrawl. Another of my Parkinson’s symptoms. So I’m not quite putting pen to paper, but shaky fingertip to smartphone to share a few slightly random thoughts on what I…

A blog of two parts: Time capsules… part 1 – memories

I had a conversation with a friend recently about the importance of memories. He asked me if I had money to spend on two holidays – one where I would be guaranteed to have a great time and enjoy every single minute while I was there, but would have absolutely no memory of it afterwards,…

A new normal – not picture perfect

Being diagnosed with Parkinson’s has been described as ‘having all the pieces of your life thrown up into the air and then landing wherever they land’. I think that’s a good description which could apply to any long term condition. Like pieces of a jigsaw all muddled up with pieces missing, or even pieces from…

2018… A year of ups and downs

I think it’s fair to say 2018 has brought me many challenges, but it’s also brought me many moments of joy. The best way I can describe this year is ‘up and down‘. As I am on a personal quest to become more resilient, so I can cope better with whatever challenges life may throw…

Reflecting on repetition, resilience and reality

A few years ago in my choir we sang Kashmir by Led Zeppelin … acapella in five part harmony. It’s a long song and was challenging to learn. I don’t think we quite perfected it. Five years later, and we’re singing it again. Somehow it seems easier and makes more sense to me now –…

Parkinson’s symptoms – No need to apologise

I used to apologise a lot and not because I was always making mistakes. I would apologise constantly because I felt bad. ‘Sorry to keep chasing you’ (at work), ‘Sorry I can’t help you’ and the classic – always apologising when someone wasn’t looking where they were going and bumped into me. Some time after…

Shipwrecked

Sometimes life throws us into situations which completely overwhelm us, no matter how resilient we once thought we were. All reason and logic disappears and the things we know in our heads – practical things we know we should do, such as looking after ourselves or asking for help – and even the things which…