I’m grateful that for most of my life I’ve been relatively healthy. Because of this I rarely took medication so it wasn’t something I had given much thought to… until I was diagnosed with Parkinson’s. The day I was diagnosed my consultant prescribed me medication straight away. I remember being really excited about the fact…
Category: Symptoms & treatments
Once upon a time
My last blog touched on the fact that I can no longer play the piano due to my Parkinson’s symptoms. This got me thinking. Yes, there are a few activities that I could do once upon a time – pre-Parkinsons – that I can no longer do and even more activities that I can’t do…
Mixing cakes, Parkinson’s and an unexpected root vegetable
Before my Parkinson’s symptoms started I used to enjoy baking. But in recent years I hadn’t baked for a long time as it’s something I find difficult with my lack of dexterity in my hands. I’m right handed and my right side is more affected than my left. I can’t usually manage to beat an…
Helter-skeltering through life with Parkinson’s
I’ve never been one for very fast rides or rides that turn you upside down. My choice of rides at a fairground was the bumper cars. I only remember going on a helter skelter a few times. It seemed like a lot of effort to climb to the top and then it seemed to be…
That shrinking feeling…
There have been times over the last few years when I’ve felt like I was slowly shrinking and Parkinson’s was taking over my life. Shrinking writing… My handwriting – which has always been small – has got smaller. It’s one of the many lesser known symptoms of Parkinson’s. I’ve recently discovered it even has a…
Chasing bubbles
I was recently trying to take photos of bubbles floating about in the air before they burst. There were so many beautiful bubbles but each time I never quite seemed to capture them all. I guess what we’re trying to do in taking photos, videos, any kind of recording is to capture a happy moment…
Summer learning (happened so fast)
I’ve recently returned home from a Greek Island where I spent the week with 60 complete strangers, and we had the opportunity to take courses including creative writing, making mosaics, singing, mindfulness and yoga. Here are some of the lessons I learned… Standing tall… In order to stand tall and grow, we need strong roots….
Living with Parkinson’s – My reality
I’ve lived with knowing that I have Parkinson’s since October 2013. I’m now 40 years old. And I am lucky that up until I noticed my Parkinson’s symptoms, in late 2012, I had only experienced one major health issue in my life. I was in pretty good health for most of my life. It seems…
My guest blog for MS-UK
Towards the end of last year I was honoured to be invited to write a guest blog for the charity MS-UK. It’s been published today, so here it is: https://multiplesclerosisuk.wordpress.com/2017/01/17/guest-blog-living-with-parkinsons/
Long term conditions – a challenge
What does it mean to be diagnosed with, and to live with a long term condition? A long term condition is just that. A condition that you are stuck with long term. It’s incurable. It affects your quality of life and it isn’t going to go away. It is something that you have to learn…