Rolling back the tears

After I was diagnosed with Parkinson’s, it was several months before I could say “I have Parkinson’s” without fighting back the tears. Three years after my diagnosis, I shared my first blog about living with Parkinson’s and I was overwhelmed (teary even) at the positive response and support that I received from friends, family, colleagues…

My DBS journey continues… Alongside England’s Euro 2020 journey

The last time that England reached the semi finals in the European Cup was in 1996. That was the first time I watched an entire football match. It was also the year I had brain surgery to remove a growth in my pituitary gland. Coincidentally, England reached the semi finals again this summer 2021, and…

Painting A Story

In a recent blog, I set myself a Creative Writing Challenge to help me to practice my handwriting and support the work of Parkinson’s Care and Support UK (PCSUK). I invited everyone who sponsored me to send me a word which I would then include in a handwritten story. I would like to say a…

Living with Parkinson’s: Memorable Moments

The theme of this year’s Parkinson’s Awareness Week (11-17 April 2021) is mental health in Parkinson’s. So I thought I would share a few memorable moments which have impacted on my mental health… The letter – I was diagnosed with Parkinson’s in October 2013. I remember the day, a few months later, when I received…

Writing: A Creative Challenge

Last month, I entered the first Let’s Combat Micrographia writing competition for people with Parkinson’s – submitting a story which included over 25 words from a list of 50 words. My story was over 360 words, it was handwritten and my writing was actually legible! And it was much bigger than it used to be….

Handwriting, hope and homework

Handwriting:Today (23 January) is National Handwriting Day. The aim is to encourage us to put pen to paper and write down our thoughts. I’m not quite putting pen to paper as I write this blog, but I did put pen to paper this morning as I started my homework for this week. Yes, that’s ‘homework’…

Waiting and hoping, but not drowning

I began my DBS (Deep Brain Stimulation) journey a couple of months ago. I’ve now been through the assessment process to see if I am suitable for this brain surgery – which although not a cure for Parkinson’s, has the potential to greatly improve my quality of life. The assessments involved an MRI scan, cognitive…