Memories … a long walk with a big wooden cross

It’s Parkinson’s Awareness Week this week (10-16 April 2017). It’s also Holy Week. And it’s got me reminiscing about my life before I was diagnosed with Parkinson’s. Specifically, about a pilgrimage I used to walk every Holy Week, which was a big part of my life…a Christian pilgrimage called Student Cross. Student Cross is a walking…

It may have changed me, but Parkinson’s is only part of me

Life is full of changes – big and small. Some changes are exciting, some can be scary. Some changes are unwanted. My life as I knew it, changed completely the day I was diagnosed with Parkinson’s. It was as though my world had been turned upside down, and I was stepping out into a big…

The wall … and the rainbow

Walls can help us to feel safe and secure. For a long time after I was diagnosed with Parkinson’s, I built up a wall around me. I only wanted to share the fact that I had this degenerative, neurological condition with those closest to me. I needed time to digest and accept this life changing…

Hope and fear

None of us know what the future will bring. Sometimes the future seems exciting, sometimes it looks bleak. I have hopes and fears for the future like most people. I also have Parkinson’s – a progressive, neurological condition. I hope a cure will be found in my lifetime. I fear my condition will get worse…

Living with Parkinson’s – My reality

I’ve lived with knowing that I have Parkinson’s since October 2013. I’m now 40 years old. And I am lucky that up until I noticed my Parkinson’s symptoms, in late 2012, I had only experienced one major health issue in my life. I was in pretty good health for most of my life. It seems…

What Start Living Today PD means to me

Start Living Today PD is a Facebook support group for people living with Parkinson’s that I am privileged to help to run. It was founded by Heidi Reynolds in March 2016 and now has nearly 900 members worldwide. Our key words are positive, motivated and happy. As we approach our first birthday, it seems like…

Exercise – Adapting is key

A song can be sung in different ways – if the original key is too high for your voice for example, you can sing it in a different key. You can also sing it faster or slower. You can adapt songs to suit you. I help to run a Facebook group for people with Parkinson’s…

Staying focused

Sometimes life can seem overwhelming. Those times when there just seems to be so much going on – good and perhaps not so good – in every aspect of life. Those are the times I need to stay focused on what’s important and distinguish between what I can control and what I can’t. A few…

Parkinson’s – the unwanted extra part

My life is made up of different parts – there’s home life, work, friends, choir, Start Living Today PD and of course there’s Parkinson’s. Parkinson’s is like that extra, unwanted part of my life – that is always there and isn’t going away. Like in a song, there are different voices singing different parts. They…

Thinking about ‘gratefulness’

Originally posted on BobbleHead Nanna:
One big thing I’ve become very aware of since having Mr P is the need to be more grateful for the good things in my life…. All sorts of things like friends and family, all the small victories, everything that makes my life manageable and good. One of the ‘in…

New ways of learning

I’m mostly a details and facts type of person. When learning something new, I usually like to start at the beginning and work my way through. When I was a child I learned to read music. It’s detailed and precise, and using sheet music can be one way of learning to play or sing a…

Letting go … an important part of moving forward

I’ve come a long way in my Parkinson’s journey in the last year. One thing I’ve realised is that in order to move forward, I’ve had to learn – and am still learning – to let go. Letting go of my belief that plans always have to be precise and stuck to rigidly – I…