A new normal – not picture perfect

Being diagnosed with Parkinson’s has been described as ‘having all the pieces of your life thrown up into the air and then landing wherever they land’. I think that’s a good description which could apply to any long term condition. Like pieces of a jigsaw all muddled up with pieces missing, or even pieces from…

Long term conditions – a challenge

What does it mean to be diagnosed with, and to live with a long term condition? A long term condition is just that. A condition that you are stuck with long term. It’s incurable. It affects your quality of life and it isn’t going to go away. It is something that you have to learn…

My Parkinson’s journey – chapter 1

In Oct 2016 it will be 3 years since I was diagnosed with Parkinson’s disease. At that time, I had very limited knowledge of Parkinson’s – I thought it only affected old people and the only symptom I knew about was a tremor. I’ve always been a fairly reserved, private person, so if you’d have…