Living with Parkinson’s… 9 nine years and counting

When I was diagnosed with Parkinson’s nearly nine years ago, I had no idea what my future would look like. I consider myself lucky to have access to brilliant NHS services for Parkinson’s and also great support from friends and family. Without both of these, my Parkinson’s journey would have been a much more difficult…

Rolling back the tears

After I was diagnosed with Parkinson’s, it was several months before I could say “I have Parkinson’s” without fighting back the tears. Three years after my diagnosis, I shared my first blog about living with Parkinson’s and I was overwhelmed (teary even) at the positive response and support that I received from friends, family, colleagues…

With a little help from my friends

I’ve been finding living with Parkinson’s particularly challenging for several months now. The constant up and down of my medication cycle with dyskinesia thrown in, always feeling exhausted, disturbed sleep, anxiety, apathy, other symptoms and even just remembering which of my tablets to take when – sometimes just feels overwhelming on top of other life…

Not yet

I haven’t written in my gratitude journal for a couple of days, and even when I do, my handwriting is often tiny and a completely illegible scrawl. Another of my Parkinson’s symptoms. So I’m not quite putting pen to paper, but shaky fingertip to smartphone to share a few slightly random thoughts on what I…

Look carefully

A lost pair of glasses in a park. They could have so easily been trodden on and broken. But instead there they were hanging on a low tree branch. I assume someone found them and very thoughtfully put them on the branch to keep them safe and hopefully in view in case the owner might…

Gratitude… a big step towards resilience

After I was diagnosed with Parkinson’s disease in October 2013, I made a choice to work on becoming more resilient so that I will be better able to cope with whatever challenges life may bring (health or otherwise). Every article that I’ve read on resilience talks about gratitude. I’d been thinking about starting a gratitude…