Self Care Week – Round up and practical tips for self care

During this Self Care Week, I have been sharing some insights into self care when you have a long term condition from some friends who inspire me. We all have different conditions, but we also have a lot in common, I think most importantly, our determination to live as well as we can with our…

Self Care Week – Making every choice count

This Self Care Week, I have been sharing some insights into self care when you have a long term condition from some of my friends. So, I guess today it’s my turn… My attitude to self care is pretty much summed up in one of my early blogs – one of the important life lessons…

Self Care with friends who inspire me: Part 5 – Faith, hope and zebras

Did you know that the zebra is often a symbol for rare chronic conditions? Medical students have been taught for years “When you hear (the ‘clip-clop-clip’ of) hoofbeats behind you, don’t expect to see a zebra.” In other words, they have been taught (rightly or wrongly) to look for the more common diagnosis, not the…

A new normal – not picture perfect

Being diagnosed with Parkinson’s has been described as ‘having all the pieces of your life thrown up into the air and then landing wherever they land’. I think that’s a good description which could apply to any long term condition. Like pieces of a jigsaw all muddled up with pieces missing, or even pieces from…

We share a single sky

World Parkinson’s Day is now over for another year. I’m grateful that this year, I’ve been able to do my little bit to raise awareness in my corner of the world. There are so many different health conditions and other causes also requiring our attention and support. The world doesn’t and can’t and shouldn’t revolve…

Long term conditions – a challenge

What does it mean to be diagnosed with, and to live with a long term condition? A long term condition is just that. A condition that you are stuck with long term. It’s incurable. It affects your quality of life and it isn’t going to go away. It is something that you have to learn…